Journal Menu
By: Anugrah Charan
Introduction: The majority of people with nephrotic syndrome is children. It is fifteen times more common in children than adults, and it differs in many ways from adults in terms of origins, signs, and symptoms, as well as recovery, necessitating specific treatment. The objective of the current study was to assess the impact of a discharge guide module on improving knowledge about nephrotic syndrome among parents of children diagnosed with the condition. Material and methods: A quantitative study was conducted on 40 parents of children with nephrotic syndrome selected by purposive sampling technique and who were admitted in Pediatric medicine ward. Socio-demographic and clinical information was collected from parents using a socio-demographic proforma. Knowledge levels were evaluated before and after the intervention using a semi-structured questionnaire. The discharge guide module was explained to the parents and provided on the same day as the pre-test, while the post-test was conducted two days after the intervention. Results: The study’s results indicate a significant improvement in parents’ knowledge about nephrotic syndrome following the implementation of the discharge guide module. The average pre-test knowledge score was 10.21 ± 2.54, which increased to 20.57 ± 4.80 post-intervention. The mean difference in scores was 10.36, with a t-value of 3.99, which was statistically significant (p < 0.05). Conclusion: The study concluded that the discharge guide module effectively enhanced the knowledge of parents with children diagnosed with nephrotic syndrome. As a result, there is a need to raise awareness and enhance information about the care of children with nephrotic syndrome.
Keywords: Knowledge, parents, nephrotic syndrome, discharge guide module
Citation:
Refrences:
1. Hafez El Beah, Basma A.; Shahin, Hala M.; Kora, Mahmoud A.; and Khalil, Noura A. (2016) “Management of nephrotic syndrome in family practice: a systematic review,” Menoufia Medical Journal: Vol. 29: Iss. 4, Article 1. DOI: https://doi.org/10.4103/1110-2098.202532.
2. Negi Shivani, Chauhan Vandana, Effectiveness of “Need Based Education on Homecare of Nephrotic Syndrome” on Knowledge and Practice among Care Givers of Children with Nephrotic Syndrome, International Journal of Health Sciences and Research Vol.10; Issue: 12; December 2020.
3. Salarzaei Morteza, Saravani Soleyman., prevalence of urinary tract infection in children with nephrotic syndrome Int J Pharm Sci Res 2017; 8(7): 3146-3150.
4. K Paul, Bagga Arvind Ghai Essential Pediatrics, Eighth edition, CBS Publishers & distributors Pvt Ltd. P.p No. 477, 552-560
5. Marlow R. Dorothy, Redding A. Barabara. Textbook of Pediatric Nursing. 6th Edition. Elsevier India pvt.ltd.2010;9:957-966
6. Trautmann A, Vivarelli M, Samuel S, Gipson D, Sinha A, Schaefer F, Hui NK, Boyer O, Saleem MA, Feltran L, Müller-Deile J, Becker JU, Cano F, Xu H, Lim YN, Smoyer W, Anochie I, Nakanishi K, Hodson E, Haffner D; International Pediatric Nephrology Association. IPNA clinical practice recommendations for the diagnosis and management of children with steroid-resistant nephrotic syndrome. Pediatr Nephrol. 2020 Aug;35(8):1529-1561. doi: 10.1007/s00467-020-04519-1. Epub 2020 May 7. PMID: 32382828; PMCID: PMC7316686.
7. Pandya NK. Clinical profile of patients with steroid sensitive nephrotic syndrome at tertiary care centre in Gujarat, India. International Journal of Contemporary Pediatrics. 2018 Jul;5(4): 1172-1175.
8. Noone DG, Iijima K, Parekh R. Idiopathic nephrotic syndrome in children. Lancet. 2018 Jul 7;392(10141):61-74. doi: 10.1016/S0140-6736(18)30536-1. Epub 2018 Jun 14. Erratum in: Lancet. 2018 Jul 28;392(10144):282. doi: 10.1016/S0140-6736(18)31608-8. PMID: 29910038.
9. McKinney PA, Feltbower RG, Brocklebank JT, Fitzpatrick MM. Time trends and ethnic patterns of childhood nephrotic syndrome in Yorkshire, UK. Pediatr Nephrol. 2001 Dec;16(12):1040-4. doi: 10.1007/s004670100021. PMID: 11793096.
10. Sarika. Assessment of Knowledge and Practices of Parents Regarding Home Management of Children with Nephrotic Syndrome at Selected Hospitals of Haryana, India. Int.J.Curr.Microbiol.App.Sci (2017) 6(10): 1496-1503.
11. Nagat F. Abolwafa, Yosria El-Sayed Hossein. “Effect of Educational Program on Knowledge and Health Care Practices about Nephrotic Syndrome among Mothers of Pre-School Children.” American Journal of Nursing Research, 6(5):244-252
12. Pandya NK. Clinical profile of patients with steroid sensitive nephrotic syndrome at tertiary care centre in Gujarat, India. International Journal of Contemporary Pediatrics. 2018 Jul;5(4): 1172-1175.
13. Laldinpuii C, Gogoi N. A study to assess the effectiveness of self-instructional module on knowledge regarding nephrotic syndrome and its home management among parents of children with nephrotic syndrome in selected hospital, Guwahati, Assam. Journal of Emerging Technologies and Innovative Research. 2019 June; 6(6): 779-788pp.
14. Banerjee, P.C. (2018). Effectiveness of Structured Teaching Programme Regarding Home Care Management of Children with Nephrotic Syndrome in Terms of Knowledge among the Care Givers in a Selected Hospital at Kolkata , West Bengal.
15. Feryal A et.al. Assessment of mothers’ practices toward children with steroid – sensitive nephrotic syndrome at pediatrics hospitals in Baghdad city. Iraqi National Journal of Nursing Specialties.2011; 24( 2):13-25.
16. Costa W.K., Moreira R.T., Lucio I.M., and Cavalcante L.P. How mothers perceive their children with the nephrotic syndrome. Journal of Nursing UFPE. (2015) 9 (2): 624-32.
17. Polit, D.F. and Beck, C.T. 2014 Essentials of Nursing Research: Appraising Evidence for Nursing Practice. 8th Edition, Lippincott Williams & Wilkins, Philadelphia.
18. Wong’s, Essentials of paediatric Nursing, eighth edition, 2016, published by Elsevier, Pp no. 520- 550
